Informed Consent 2.0 Improves Health Decision Making
When a doctor explains treatment options to a patient, it’s often little understood; frequently glossed over; and delivered in over-technical terms. A new movement in health care is makings strides to change the status quo, and with it the decisions of a whole new group of patients.
Case Examples of Informed Consent Opportunities
Currently, the most effective early warning signal for prostate cancer is an elevated level of prostate-specific antigen in the blood. But that test is nowhere near perfect – many men with prostate cancer test negative for PSA, and men who are overweight and have developed prostate cancer often have reduced PSA levels. Up to 25% of men with prostate cancer test negative for elevated PSA.
The medical world is full of situations like these, where tests and diagnoses are not as clear-cut as patients might think. If you knew that some blood tests were unreliable, would you still choose to take them? What about when the situation is more serious than a simple blood test – what if you had to choose between several rounds of chemotherapy, or the removal of one or both breasts, as a treatment for breast cancer?
The Solution to Improving Patient Decision-making
The fact is, with medical science becoming increasingly sophisticated and more highly technical, it’s harder for patients to keep up. What’s the solution? A growing movement of doctors is pushing for a solution that has become known as informed consent 2.0. The idea is to promote more extensive patient education in the form of decision aids – guidelines written in plain English, rather than overly technical medical language, to help patients fully understand the positives and negatives of their options for medical treatment.
The goal, say the doctors, is for patients to view these guides before they visit their doctor, so that during the appointment more time can be spent on patient decisions rather than explaining their options. At New Hampshire’s Dartmouth-Hitchcock Medical Center, for example, every woman who is diagnosed with early-stage breast cancer views a video decision aid before ever seeing a surgeon. The video includes information about treatment options – tumor removal followed by chemotherapy or full – breast removal and explains that both options produce almost equal survivability results.
Programs such as these are even more important in light of the results of a recent study from the University of Michigan which suggests that many patients making common medical decisions over medication and other treatments are not well informed. Many patients, for example, said their doctors rarely discussed the disadvantages of various treatment options.
photo credit: Lisa Brewster
